Three days after being diagnosed I was headed into my first brain surgery even though the doctor had never done an AN before I felt comfortable with him after our consultation. I have had this tumor growing inside my brain for nine months I did not know if I had nine seconds, nine minutes, or even nine days To seek a second opinion. When I woke up two days later I was told they weren’t able to remove the entire tumor because it was attached to a facial blood Vessel. My face was still pretty swollen and my right eye was covered with bandages and my left eye was covered with some kind of patch and I had some kind of device on my head because I had developed an infection in the operating room which I later found out was meningitis. After spending several weeks in the infectious disease ICU my parents decided at the direction of the doctors to place a VP shunt in my brain to help with the spinal fluid and the infection. Then I had to do Cyber Knife radiation in 2010 and after ALL that something STILL wasn’t right! WTF?! Right?! I said the same I needed a SECOND shunt to control a pocket of fluid in a certain part of my brain! ONLY ME! So now I have a brain, a tumor, plus TWO shunts all crammed in this head. I don’t know how. That’s for Dr. B to figure out 🤷🏽♀️. But now him and I are joined at the hip.
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