Some things that suck when you are fighting a tumor

Almost 10 years and it still sucks!

Not being in control of my body is HIGHLY annoying. When you have a Brain Tumor, two shunts, and hydrocephalus. Not to mention the effects from 19 brain surgeries your immune system is just about shot! Vertigo still sucks, my gate balance is off, many say and believe radiation destroys your balance nerve. 🤷🏽‍♀️

Radiation and tumor medication destroys your teeth years later! I had a phobia of dentists. Now I see him more than some family members. Damn shame. Radiation will save your life but you didn’t need those teeth 🦷 right? Gums are sexy 😂😂😂

Waking up and having to wait for the room to stop spinning and get my bearings before I get up to walk. I’ve had to pee really bad and tried to race to the bathroom before, trust me that story doesn’t end well. There was a time when the paramedics were at our house on the regular from me falling hitting my head. If I hit my head, automatically gotta go to the hospital. 

I know I must have some state of the art crap inside my brain because they taught me how to fall without hitting my head! Who does that? ME! I had to learn angles to fall to avoid hitting my head. The tech has been with me from day one and he would come out and personally check on me and program my shunt. 😊💛

A random “this don’t feel right” MRI can turn into surgery that afternoon. Now that I have Medicare I’ve been with my wonderful doctor Dr. B and his team at Scripps for about eight years. I joke with him that we are like a married couple because brain surgery is complex and I can’t trust my life to just anyone.

Sucks being deaf in the LEFT EAR. People always go over to my left side to talk lol or think I’m being rude when they are talking to me on the couch. I basically hear about sixty percent of group conversations and I play along and act like I heard it. People tend to get annoyed when you ask them to repeat things plus it’s not as funny. I have tried hearing aids, they suck!

I hate when my daughter is calling me and I can’t tell which direction she is calling from. Being deaf in one ear you LOSE that ability. Thank goodness my cell phone lights up when it rings cuz I can NEVER find it! 🤷🏽‍♀️😩