Venting

Typed this in my Acoustic Neuroma support group today. Whatever you have, or are going through, it helps to find a supportive support group. I’m involved in several online since I am a complicated and rare case as well as have attended some in person. My online confession/rant today:

Need to rant/ vent: I HAVE REAL FREAKING PAIN! Your migraine or cramps don’t compare! Maybe if ppl stopped judging and being condescending they could empathize what it feels like NOT to have control of your own body plus being in pain is BEYOND frustrating! Yesterday I woke up and 🤮, today the left side of my head is killing me. 🤷🏽‍♀️ #tired

Fatigue is common with this condition. After ten years I understand why. Your body is tired of doing it’s normal job plus fighting off this daily headache. I do Botox, epidurals, & occipital nerve blocks and that just takes the edge of the daily attacks. They are the worse. It’s an invisible disability so sometimes I feel as if people aren’t as sympathetic or empathetic to how bad things are because they can’t physically see the pain.